First I want to say I am completely new to all this, so bear with me if some of this is incorrect or terrible to navigate, or anything else wonky and difficult. I wanted to start this blog because of my very special daughter, and because there is such a small amount of information about her condition/s. I have been looking for years for support groups and other parents with children like my Arwynn, and found very few, even less who wanted to keep in touch and share stories and advice. (Some new sites to me have actually inspired me to do this!) It will take me some time to make a timeline of Arwynn's story and catch everyone up, as she is now 6, but I will do my best. Thanks again for reading our blog! "The best and most beautiful things in the world cannot be seen, or even touched - they must be felt with the heart." Helen Keller
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